← Return to Questioning my diagnosis of PMR

Discussion

Questioning my diagnosis of PMR

Polymyalgia Rheumatica (PMR) | Last Active: Jul 1, 2022 | Replies (18)

Comment receiving replies
@linda7

I am 72, have had PMR for over a year now, on prednisone for almost a year, and I have had symptoms in my legs for most of that time, though also upper body, shoulder and hip symptoms off and on. I initially went to my internist with a main complaint of leg weakness and pain. Since I have a long history of lumbar spine problems she sent me for an MRI. I essentially have no discs at four spine levels so she sent me for a lumbar cortisone injection (which I never received). I told her I thought something else was going on but she did not believe me. Then I got worse. I was running a fever, I felt sick but did not have Covid, couldn't raise my arms and in the morning I felt like my legs wouldn't hold me when I got up. Finally I got to a rheumatologist and was put on 20 mg prednisone which took all my symptoms away. I'm presently on 10 mg after twice failing the taper to levels lower than that. Most of the symptoms I have now are in my legs. I get pain sometimes in the front of my thighs, sometimes the back and sometimes in the calves. In the morning I'm very stiff and my shoulders and sometimes neck hurt. About 2 hours after I take the prednisone I am much better. I have a lot of fatigue. Symptoms in the legs are not the "classic" PMR symptoms so I have, at times, like you, questioned the diagnosis. However, the combination of everything I've experienced confirms in my mind that I do have the disease. You did not mention lab results, but my ESR was high (35) but not really high and my CRP was normal.

Jump to this post


Replies to "I am 72, have had PMR for over a year now, on prednisone for almost a..."

Thank you Linda7. The problems you describe in your legs are very familiar. While I don't have the other issues you have, I wonder if I should just bump myself back up to 10mg. My labs are all falling in the normal range. Thank you for sharing your experience with me.

I have had this PMR since 4/2021. I have been tapering down since October, but have noticed a heaviness in my whole body. When I get up to walk, it feels like my legs don't want to support me, especially through the hip, girdle area. I have no real pain except in my neck and knees at night. I am able to lift myself out of a chair, but not up off the floor if I get down with my young grandson. I have gone down to 2 mg a day, but am feeling worse every day. I am thinking of going back to 10 and see what that does. I hate this tired heavy feeling in my legs. Is this the PMR, or something else?? At 73 years old, you never know.