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← Return to Tapering off of Prednisone
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Polymyalgia Rheumatica (PMR) | Last Active: Feb 28, 2024 | Replies (313)
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Hi …I agree that tapering too fast can cause pain. I’ve been on prednisone since last September —long story. After some trial and error about how to taper and good advice here, I came up with a system that is working for me. No pain. However, it takes me about 3 weeks to ramp down one mg. It’s gonna be at least a year before I can totally get off prednisone at this rate. Right now I am ramping down to 12 mg (down from 20 a few months ago). I’m worried about being on prednisone so long but don’t want the pain to come back. Just wondering if others were on prednisone so long. Thanks!!!
Replies to "Hi …I agree that tapering too fast can cause pain. I’ve been on prednisone since last..."
I agree with your method of tapering. I am doing that, too.
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I’ve been on Prednisone for at least ten years for PMR. I’ve spent most of the last 3-4 years on 3 mg/day. When I’ve gone below 3, my symptoms come back with a vengeance, & I go back to 5 & slowly taper back to 3. I’m 86-years old & expect to be on Prednisone for the rest of my life. All my health checkups, blood tests, etc. are within normal range. My most annoying symptom of long term Prenisone use is very thin skin, easy bruising, & what seems to be permanent discoloration in my lower legs. Otherwise, I feel fine & live an active life (for an 86-year-old, I guess 😊.)