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Does Small Fiber Neuropathy also cause muscle spasms?

Neuropathy | Last Active: Jan 31 10:26am | Replies (61)

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@jt67

I just ran across this post searching for answers, because like you, I can't get an explanation for the fasciculations in my legs, that's what you are having. I had peripheral neuropathy when the doctor put me on a statin and it immediately started causing vibrations in my back, I was only on them for 6 months but now I have constant vibrations in my entire body. I have 1 leg that is affected badly, feels like I'm balancing on a toothpick, it's worse without shoes, my limbs burn,constant fasciculations in my calves and occasionally in my thighs. All my MRIs ,blood work show nothing, had a nerve biopsy that determined I have small fiber neuropathy. I have had 3 EMGs done by 3 different neurologist, the first 2 show slight slowing and the 3rd said no slowing of nerve conduction.
My second EMG I was given a diagnosis of Charcot Marie tooth, which is when I started seeing the 3rd neurologist at the university hospital, who said I don't think it's that, so she sent me for a 3rd EMG that says nothing is wrong. I hate when they dismiss our symptoms because they don't fit their diagnosis. I do believe statins played a big role in what I'm dealing with, but doctors seem to dismiss the statin factor.
Back to charcot Marie tooth, I was pretty confident in that diagnosis, it explained so many issues I had experienced over a 40 year period before the neuropathy kicked it. I joined a support group for the disease and we share so many of the same symptoms, including wobbly legs.
Statins do cause neuropathy, did you have neuropathy before or after statin therapy?
Hopefully one of us can find the answer. I'm so tired of tests that prove nothing. Then the doctors blame it on anxiety.

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Replies to "I just ran across this post searching for answers, because like you, I can't get an..."

Hi @jt67, Welcome to Connect. I'm glad you found Connect. I also found Connect back in 2016 when I was searching for answers after being diagnosed with idiopathic small fiber PN. After doing my own research I also decided against taking statins to help with my cholesterol specifically because it can induce neuropathy. There is an older discussion on the topic here - Is there any connection with statin use and neuropathy?: https://connect.mayoclinic.org/discussion/is-there-any-connection-with-statin-use-and-neuropathy-i-have-had/. I also shared a post in the discussion with reference links that may be helpful if you haven't seen them. Here's the link to the post - https://connect.mayoclinic.org/comment/100010/.

I'm glad to see that you haven't given up and are still searching for answers. Have you ever heard about The Patient Revolution? - https://patientrevolution.org/