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Newbie MAC caregiver with questions
MAC & Bronchiectasis | Last Active: Jul 23 8:34am | Replies (29)Comment receiving replies
Hi,
Yes we are aware of the 12-18 months of continuous treatment, or in my husband's case possibly/probably longer.
So far Bruce has had multiple consecutive negative cultures with a positive showing up in the middle. He is not considered to be on a successful track yet, after 10 months of treatment.
Following a sensitivity analysis on the positive culture his ID/Pulmonologist believes he has two strains of MAC or mixed MAC, since the recent drug susceptibilities differed in part from his initial MAC drug analysis.
His MAC is cavitary. He also has Bronchiectasis, in addition to radiation caused Esophagitis and a saber sheath Trachea.
Amikacin was switched out for inhaled Arikayce liposome after Bruce developed serious hearing loss.
My husband has a lot going on in his lungs so, as his caregiver, I welcome any comments, insight, suggestions, and war stories.
Thanks much.
Replies to "Hi, Yes we are aware of the 12-18 months of continuous treatment, or in my husband's..."
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Hello Melissa,
You and Bruce have so many challenges. I hope you have seen an improvement in any aspect? When we last communicated he was having overwhelming mucous. Did he try postural drainage to get it out more easily?
Is he drinking and eating more now or does his esophagitis bother him too much?
I have found that zinc and calcium supplements have calmed my inflamed throat.
With all his problems and constant treatment, you must be doing a terrific job at management to keep him at home. Cudos to you!