← Return to Aromatase Inhibitors: Did you decide to go on them or not?

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@tygerrag2

would like feedback from others that have decided to not take AI"s or tamoifen.

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Replies to "would like feedback from others that have decided to not take AI"s or tamoifen."

@tygerrag2, I moved your question to this existing discussion:
- Aromatase Inhibitors: Did you decide to go on them or not? https://connect.mayoclinic.org/discussion/arimidex/

Tyger, what criteria as well as tumor and personal factors are you considering to make your choice?

I decided to not take aromatase inhibitors. I did have a low 'risk of locoregional recurrence within 9 years" according to the OncotypeDX test my oncologist suggested and we had done. [5% if I take the drug, 3% if I don't IF the OncotypeDX is valid and the oncologists I consulted think it is.]

I'm older and have osteopenia, which I hoping to reverse or keep in check, and the effect of estrogen depletion on the body, cardio system and bones is a concern that got my attention. I was about to write 'only time will tell if I was right' but would be intrue. I'd have a 3% risk IF I took the meds anyway so, if I suffer a recurrence, there's no way to prove it wouldn't have happened if I had taken them. It's a very personal judgment call though.

I took Tamoxifen for 9 months and the side effects were awful. I was supposed to take another drug but did not. Had a double mastectomy in 2002. So far cancer free thank the Lord.