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New to NETs: Found lesions on liver during a health check

Neuroendocrine Tumors (NETs) | Last Active: Jun 23, 2022 | Replies (3)
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@pjsheridan2022

Eating well but have lost around 12 pounds since start of Ocerotide in April.
In retrospect did have flushing on occasion prior .
Soft stools but not diarrhea.
Local oncologist diagnosed and 2nd opinion at Mayo confirmed.
Heart ultrasound during a healthy heart check got a view of the spots on liver so it was via that and follow up CT and biopsy that it was confirmed.

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Replies to "Eating well but have lost around 12 pounds since start of Ocerotide in April. In retrospect..."
Teresa, Volunteer Mentor | @hopeful33250 | Jun 23, 2022

@pjsheridan2022

I appreciate the added information. Have you mentioned the weight loss to the doctor who prescribed the Octreotide? If not, this might be a good step to take at this time.

I would like to invite some other members who have a similar diagnosis to join this conversation, @kjstein, and @laurell410

@psheridan2022, will you be able to join us at the July meeting of the NETs support group via Zoom? We will meet on the first Thursday of the month. It is a great way to learn more about this disorder and how others are dealing with their diagnosis.

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