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Anti-IgLON5 disease

Autoimmune Diseases | Last Active: Jun 9, 2023 | Replies (4)

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@hopeful33250

@rgbaker

Your interest in this disorder is understandable as it is rare. The NIH has an article about it, here is the link, https://pubmed.ncbi.nlm.nih.gov/28381508/.

It sounds like you have a good medical team in place. What is the most difficult symptom you are experiencing now?

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Replies to "@rgbaker Your interest in this disorder is understandable as it is rare. The NIH has an..."

Hi
The menieres symptoms, and memory loss and fatigue are the most distressing at the moment. Food bolus is occasional and I can manage it for now.

Hi again
I’ve read that article and most everything else I can find on the internet.