Central Sensitization - please share your stories

I have been in therapy for quite some time, but it hasn’t helped. I’ve been told I need a trauma therapist so I’m looking into that. I just don’t seem to be getting into the right places around here. I can’t find anyone who knows about central sensitization either.

Sandy

Read the book “Managing your Pain Before it Manages You”
Available on Amazon.

@sandywilford Not many doctors understand or have training in Central Sensitization, nor do they care much because it is outside of their specialty box. We really can't blame them, they're just doing their jobs. When traditional medical approaches begin failing, specialized doctors typically stay in their lane and don't know how to treat CSS. That's why a pain management program that treats the whole body holistically is the best approach to CSS. It requires commitment from the patient too. They have to want to work towards personal growth, improvement and management of their symptoms.

Have you looked at the link I provide you for Mayo's pain rehab center? You said earlier that you want to go. Is it something you are serious about? Do you believe it's an attainable goal for you?

Sorry to hear what you are going thru. I have IC and Fibromyalgia also. I found a great doc that did some DMSO treatments with me. It is a concoction of diff meds together inserted in bladder thru a catheter. Diet is a big key in this also. I was on the drug Elmiron as a guinea pig when it first came out. It took about 6 months to work but stopped the spasms. It does have side effects of blurry vision and other eye issues so ask about that first. My urethra is closing off and am going to Mayo for a reconstruction surgery in just a cpl weeks. It's been 25 yrs I've dealt with this pain and burning when I urinate. Also I have fibro ( and plenty other issues) and have taken nsaids for a very long time. I just recently started using cbd oil gummies and to my surprise they have been bery helpful. My spirits are lifted immensely and pain is minimal. Haven't had any side effects so far. I also doc ordered started an anti inflammatory diet. It's pretty strict but good for you. I'm one month in and have seen such a major difference in how I feel and the new energy I have. Wishing you all the best. God bless you ! It's not easy to go thru as no one can see your "injury" so most don't believe it's real. I know tho !!

Yes, going to the pain center would be attainable for me. I just didn’t know how they could help the bladder. Is their an anxiety program their also. Would a doctor who specializes in css evaluate me?

Sandy

@sandywilford Yes, they would. First, insurance coverage and acceptability is verified. Next, Mayo PRC requires your doctor (PCP or specialist) fax all medical records and test results. After review, the PRC will set up 2 interviews, 1 with a PRC medical doctor and 1 with a psychologist for evaluation.

I would suggest that they need more training in understanding the biopsychosocial nature of pain. Then they would handle sensitive patients differently for a start. And those with an existing central sensitisation condition also. I told my surgeon before surgery that I was hypersensitive. There was no clue that this was heeded in any way.

Has anyone had any success getting any pain relief from PEMF Therapy?

@irr4et, you may be interested in this related discussion:
- Looking for recommendations on electromagnetic mats (PEMF) https://connect.mayoclinic.org/discussion/electromagnetic-mats/

@sandywilford Hello Sandy, how are you doing?