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Burning Feet syndrome

Neuropathy | Last Active: Sep 24 7:56pm | Replies (167)

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@pfbacon

I take Lyrica at night, 225 mg, and gabapentin in the day, 1200 mg twice a day. Gaba doesn't make me sleepy but lyrica does. I started out with 1 small gaba a day, that relieved the 'needle-sticks' and burning for a year, then my nervous system began dying at a faster and faster pace - the pain was very bad, more like red hot swords and fireworks bursting up through my feet about 8 times per second. My neurologist ramped up the doses gradually to relieve the pain, then referred me to a pain specialist who has upped the dose several times since. Neuropathy is in my arms now, it feels like hives plus wasps stinging for hours. We are discussing other remedies. I don't want anything that makes me sleepy. I've tried a few narcotics, all of them, except Tramadol, made me sleepy. The 'holistic' remedies in health stores didn't help at all. CBD cream didn't help either. Patches with Lidocaine numb it for awhile. When my condition breaks through the Lyrica and Gaba I'm taking now, I might try the lidocaine infusion. Peggy

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Replies to "I take Lyrica at night, 225 mg, and gabapentin in the day, 1200 mg twice a..."

Oh my God. All these stories I am hearing. I just started on the Gabapentin & Cymbalta but I'm not going to take any more than I am now & that is 300 mg. I guess I will live in pain. I heard horror stories about Lyrica so I won't take that. I wish everyone the best. Genie

Hi Peggy
I recommend giving it a try. I'm sitting in the hospital receiving it as we speak. I have a love/hate relationship with it. Been 3 and a half months and I'm at 2nd to highest dose for my weight. Boycotted it last week because it was taxing on me and I needed a break mentally. Needed to understand where my neuropathy was months later and it's progression. It was an eye opener. Although I still have pain with the infusions, some days debilitating, I now realize the pain that lurks in every nook and cranny of my body returned with a vengeance. There you have the love/hate definition. If you are willing to get past the possible side effects and experimentation of dose and possible side effects then go for it. It's a safe procedure as long as your heart is healthy and your free from seizures.
Willing to answer any questions you may have.
Rachel

Oh my :'( I am so sorry you are experiencing that! Realistically though - it may be in my future too, so best to learn about it now rather than wander around seeking answers like I have been for the past 10 years. I like that you are taking 2 different meds - one for day and one for night. It helps me to understand that a mix and match approach IS something that is possible.

I realize 100 mg is a very small dose and it's very early, but so far I've had zero side effects. I'm hoping my doctor's approach to very slowly upping the dosage keeps it that way.