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Has anyone had IVIG Infusions for Neuropathy?
Neuropathy | Last Active: Oct 3 7:57am | Replies (491)Comment receiving replies
Status report. I have been on IVIG for about 45 days - infusions very other week. I just looked at my labs for this period and it shows a decrease in all my blood counts ie red, white, etc This phenomena is called
pancytopenia and seems to affect a minority of people who receive IVIG. The nurse at the infusion center said it is common and noting to worry about. My brilliant husband is worried about it and now so am I. I would be very interested to hear from anyone who has expeienced this condition as a result of IVIG.
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I was first on sub-q IGG then IVIG for a total of a few years. Neuropathy symptoms no better, as a matter of fact they progressed (and still are). It also threw off many other labs, including low platelets, red/white cells. (Yes, common response to being on the infusion.) Since being off of IGG my platelets have normalized. But, my white cells are still low because I also have CVID.