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Taken off of Keytruda/Lenvima for stage 4 RCC

Kidney Cancer | Last Active: Feb 8, 2023 | Replies (11)

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@nang

My husband starting feeling worse after being off the treatment for two weeks. He called his oncologist and they told him to call his regular doctor (who he hasn't seen since last December and they haven't been involved in his treatment process)! So I called the oncologist office asking what the protocol was? Why was he referred to his general practitioner? I took your suggestion and asked if they had an assigned symptom manager nurse or an oncologist social worker. They said no. So I asked to speak with an office manager. Bottom line, they got us in to see another oncologist since ours was out of the country. This oncologist started my husband on steroids to help dial back the side effects and they seem to be helping. We go back and see him in 10 days. This oncologist spent time with us and explained things the other one NEVER did. I hope this opens my husband's eyes on our he should be treated.

Thank you for checking up on us.

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Replies to "My husband starting feeling worse after being off the treatment for two weeks. He called his..."

I'm glad you were persistent and got the help and attention your husband needed. Might you be able to transfer your husband's care to this new oncologist?