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Burning Feet syndrome

Neuropathy | Last Active: Sep 3, 2023 | Replies (160)
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@jimhd

@skullborous I'm looking up information about DMSO. Thanks for the tip. I'll probably give it a try.

@oldkarl I know the burning pain in the feet tears. I've shed them, myself. It's unfortunate that a treatment can't always be found for every ailment, and that what works for someone else might not work for me.

I know that it helps to know you're not totally alone, but there are good people who share your pain and will listen and encourage. Is that as true for you guys as it is for me?

Jim

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Replies to "@skullborous I'm looking up information about DMSO. Thanks for the tip. I'll probably give it a..."
Jim, Volunteer Mentor | @jimhd | Oct 22, 2019

Looking back through this discussion makes me wonder how all of you with hot feet are doing.

I had a spinal cord stimulator implant back in June of '17, and felt a ton of relief. It still helps, but not as much. I have the stimulator adjusted every 3 months, and my feet feel better for a while, gradually hurting more until I get it adjusted again.

I have tried every neuropathy medication and a bunch of others off label. Most had no effect on the pain, others had unacceptable side effects, especially Lyrica. I've been taking morphine sulfate contin for several years. It's been the only medication that has helped, except for Lyrica. Lyrica was starting to give me some relief, but I reacted badly to it and spent a few days in the hospital.

A month ago I started taking Imipramine, and it's really making a difference. I can be on my feet all day and my feet hurt very little. I need to talk with the pain specialist about why they hurt when I lie down at night, even after a good day.

Is the hypnosis still helping? Any new diagnosis or treatment?

I tried to cut back to 15mg of morphine sulfate contin in the morning, but I had to go back up to at least twice a day and sometimes 3x. I'm concerned at this point about the risk of serotonin syndrome. I have some of the symptoms, but that doesn't mean it's serotonin syndrome.

Hope life is treating you well.

Jim

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