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Looking for neuroendocrine tumor (NET) with carcinoid syndrome support

Neuroendocrine Tumors (NETs) | Last Active: Jun 28, 2022 | Replies (12)
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@hopeful2

It is too soon to tell where. I posted at that site because I could not find the NET group through the search engine. You have no idea how much I appreciate this Mayo service. I have been so alone in all of this. I wish that I had found you sooner, maybe I would have gotten a correct diagnosis sooner. You are very caring people. Something that I need badly about now. Thank you.

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Teresa, Volunteer Mentor | @hopeful33250 | Jun 21, 2022

@hopeful2,

I look forward to learning more about your journey with this health issue. Would you be comfortable sharing more about your symptoms and what your current medical team is doing to rule out NETs?

I would strongly recommend that you seek care from a NET specialist. They are the best ones to diagnose and treat this rather rare form of cancer. If you would like to consult with Mayo Clinic, either in person or by video, here is the link where you can start this process,
http://mayocl.in/1mtmR63
I look forward to hearing from you. Will you post again?

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