Me too. Chiropractor, physio and massage and nothing was helping (of course). So frustrating and expensive. Chiropractor thought it might be RA and I suggested PMR after researching and he gave a very reserved maybe. Not RA as bloodwork showed. Extremely high CRP and in Jan. 2022 finally was referred to a Neurologist (because he was willing to take me in on urgent basis) and he diagnosed the PMR, prescribed Prednisone 20mg. An overnight miracle, although tapering is difficult and should be done at a snail's pace.
Family doc (who has since retired) said it was just old age as were most of his diagnoses. This is a great group for learning things about PMR, GCA and other related. Stick with us, because truly, the doctors do not know much about it at all. Very slow on the tapering.
Also, if I may, suggest this amazing site: https://healthunlocked.com/pmrgcauk/
Cheers ~ Deb