I understand your frustration, that’s why I became my own health advocate. I used all my test results and discovered the bowel condition I have since birth, is not IBS, after 5 years of getting every test known at the time. My research starts at the top 5 hospitals in the country. Getting a clue here and there, following every link they suggested. Now, knowing my past medical history, I get a clue, mutated genes 11 and 12 could be the culprits. The lightbulb goes on, I need a geneticist because my bowel cannot absorb certain fats and proteins which gene 11 & 12 can cause, BINGO!!! What got me interested in this symptom, I had liquid diarrhea for 6 solid months and nothing else. Food goes in, liquid comes out like I’m pissing thru my a$$hole. My pcp suggested everything he could think of, nothing stopped it, probiotics, go in and right back out. Then one day, it stopped on its own, I had lost over 30 pounds, I’m so weak, I could barely walk.

So you see how a bit of information, a never give up attitude and a lot of research solved my so called misdiagnosed IBS into a family genetic search. Unfortunately, other major health problems have sidelined me and I’m concerned over my possible death from my heart birth defect. So pick one of your clues and begin your journey to knowledge and wisdom, I did, so can you!!!