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Think I have Giant Cell Arteritis (or GCA)
Polymyalgia Rheumatica (PMR) | Last Active: Jan 30 8:20pm | Replies (70)Comment receiving replies
Hi @novabill, I think I would be alarmed too and probably would have made the same decisions if my PMR was still active and I had some prednisone around to take. It's good that you were able to give your rheumatologist a heads up through your patient portal and that you have an appointment on Monday.
My PMR is in remission but the past week or so I've noticed I have some pain and tenderness in my scalp on the top of my head. I worry about my vision also so I'm going to check with my doctor next week.
Can you let me know if you find out more at your appointment?
Replies to "Hi @novabill, I think I would be alarmed too and probably would have made the same..."
Hi John,
The scalp tenderness I experienced lasted about two weeks and I didn't feel it unless I touched the top of my head with my fingertips. It might be a good ideas to get your CRP checked too. A doctor told me to immediately go to the emergency room if I had any difficulty seeing.
Do you still take prednisone?
Take care!
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I had two bouts with PMR and then was in remissions
When I quickly developed double vision and tenderness in temples. I immediately got an appointment with my rheumatologist and was given 60 ml of prednisone. Blindness was avoided by quickly taking that large dose of prednisone- GCA was diagnosed. My Dr. prescribed that high dose even before a definitive diagnosis of GCA to prevent vision loss. I was taking prednisone for 1 1/2 yrs. but now take Actemra.