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Pituitary and pNET: Can't do the things I love anymore
Brain Tumor | Last Active: Oct 30, 2022 | Replies (17)Comment receiving replies
Hello, Anthony (@sturns). I would like to join Colleen (@colleenyoung) in welcoming you to Connect. It sounds like you are dealing with a lot of changes as a result of the surgeries and removal of the pituitary gland as well as the PNET diagnosis.
As Colleen asked I'm also wondering what you mean by PNET. Is your neuroendocrine tumor in your pancreas? I hope you post again and let us know more so that we can connect you with others on Connect who might be able to share their experiences with you.
You indicate that you cannot do what you used to love and that your pain is terrible. Is your oncologist offering you any help with these issues?
Replies to "Hello, Anthony (@sturns). I would like to join Colleen (@colleenyoung) in welcoming you to Connect. It..."
Hi,
My oncologist has sent me to palliative care and they are helping but nothing tried is taking all the pain away, i'm a 5-6 at times and mostly 7-8 and it spikes up to 9 and thats with meds. I just have to learn to live with a certain amount of pain, and that ok, they have helped and have been very good to me. I have pancreatic neuroendocrine cancer/tumors.
Thanks, Anthony
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Yes the oncologist sent me to palliative care but I really hate pain pills. They just make life manageable. The dr's I have are really good but I have 23 tumors in my liver, all over the lymph glands, on the end of the pancreas and more. The pain is when my ab's get distended they sent pain in the liver region and then my back even across. The pain just comes out from left field and it is bad, to your knees bad. Thank you for listening, I'll get through it.
Anthony F