Have you had a Western Blot test for Lyme? Any tests for autoimmune issues?

Have you been to a neurologist yet, l also have experienced a number of the same symptoms. But mine started in my 30’s and are still happening at 78, with different new ones occurring every so ofter. Part of your problems are neurological but you may be in the same situation as me. Many of my physical problems are rare in nature, so if the doctor uses their text book knowledge, they misdiagnose me. I tell my doctors to throw away their textbook knowledge because I’m not in it since I’m a freak of nature. It took years to track down different symptoms, some they miss altogether.

As an example, I’ll give you the worst case of text book misdiagnosed knowledge that nearly killed me. It happened in 2018 and involved 14 different doctors from four different departments. I was in agony, so they placed me in a special ward to rest. For more that 9 months, l went to the ER’s multiple times, only to be told the level 9 out of 10 pain was of unknown origin and sent home. My description is as follows: pain starting under right rib cage, goes to the sternum, then up, explode over my entire chest and shoot up toward my jaw and disappeared. When l was in the special ward, different doctors came in to see me from Cardiology and Internet Medicine. I get all kinds of textbook guesses, GERD, angina, imagination, what ever they could think of. With level 9 chest pain happening up to 4 times a day, day after day, nobody knows what’s wrong. Suddenly my blood pressure shoots up to 211/113, that’s stroke territory. They forget about the chest pain and try to get it lowered. None of the medications they give me works but the chest pain sure continued. To shorten this story, I'm discharged with a bp of 209/101, chest pain knocking me to my knees it hurts so much. For 45 days, every day, the fore mentioned symptoms continue till they give me a stress test. The results, 3 blocked holes in my heart and 25 minutes after the stress test was over, I was on an operating table.

So don’t stop getting medical help but now I research every symptom I have, up to 100 hours sometimes and guess what? I discovered l have a rare blood disorder call MGUS. I also discovered I have a rare condition called Wolff, Parkinson, White Syndrome a 1 in a million heart birth defect. So start googling till you find the correct answer. You can easily be led to the wrong problem so l follow this rule. Don’t just ask questions, ask the correct question. I found l have both rare problem because I looked until I asked the correct question. By the way, I’m being treated by two of the top doctors in my area. Have any questions?

Hello @nicosuave. Thank you so much for coming back to give an update. I wanted to keep your updates together so you will notice that I have moved this newer post back to a previous discussion you started so that members who joined you can see your update more easily.

Back in February you mentioned getting a referral to a new doctor for a second opinion. Did you ever end up going that route?