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I am looking for others diagnosed with microscopic colitis
Digestive Health | Last Active: Oct 27, 2023 | Replies (198)Comment receiving replies
I can relate to this! I was diagnosed with microscopic colitis 15-20 years ago and Prednisone was the ONLY thing that helped. 5 years later I went on a Gluten Free diet and it cleared up!
Now I have major digestive issues: Hiatal Hernia surgery last February (my stomach was literally in diaphram) diagnosed with gastroparesis in May which required another stomach surgery in October. Began to get really sick afterwards and at first they diagnosed dumping syndrome, and 5 months later I finally requested a stool sample and I had C-Diffe all the while...since then I still have problems recurrent diarrhea but now it is getting worse and seems different than before. I mentioned Microscopic colitis and they almost laughed at me (the NP was very rude about it). Seeing a new GI doc soon! Wish me luck!
Replies to "I can relate to this! I was diagnosed with microscopic colitis 15-20 years ago and Prednisone..."
Unless someone has actually lived with microscopic colitis, they have absolutely no concept of or appreciation for the impact of this condition has on ones life. I have had it for 23 years. Budesonide could only be taken for 9 weeks. I would have thought once the inflammation was “healed” My elimination would have returned to normal. But even with rigid and strict dietary changes, I am back to full blown MC daily and nightly. Have tried the Budesonide route twice over a period of years and am considering it again, but very hesitant because it provides no lasting positive outcomes. I have had additional testing done. Thankfully there are no other medically identified digestive challenges. My best outcome so far is the Paleo diet. Not my preference, but I do get some relief. Also know your own trigger foods. What I eat does seem to matter a LOT!
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Yes, good luck, a good gastro dr. can find it with a colonoscopy, just need to take a biopsy and view under a microscope. Let me know what you find out.