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Pachymeningitis: Anyone else?

Brain & Nervous System | Last Active: Jul 23 5:43pm | Replies (110)

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@77smith77

New to Forum. I was a 100% service connected Veteran before this all started. Diagnosed with Myasthenia Gravis in 2021, and Pachymenengitis in Jan 2022 after Open Brain Biopsy at University of Pennsylvania Hospital. Had horrible Headache and R Eye Pain for about a year. After the biopsy I went to Neuro Intensive care and Had 1000 Mg of IV steroid daily x 3 days. Pain has been gone for about 5 months. I have some cognitive problems- pulling up words, correctly taking my 25 meds keeping appointments. I have balance and eyesight problems. Have Physical Therapy twice weekly. I may be the only person with both Myasthenia Gravis and Pachymenengitis. Great care from The Philadelphia VA. I have had 2 Rituxin IV's and am waiting to see how that works out.

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Replies to "New to Forum. I was a 100% service connected Veteran before this all started. Diagnosed with..."

Hello @77smith77 and welcome to Mayo Clinic Connect. You've certainly had quite the last couple of years with these two diagnosis. I am glad to read your pain is gone, however.

When did you have your two Rituxin IV's?