It is a work in progress.... I'm convinced we need to see a neurologist, but mayo appointment for that is mid September. I have called at least 50 times and have been unsuccessful in getting that moved up. We did see a local neurologist, who in my opinion is an uncaring jerk. He told us my husband "shows signs of some kind of disorder", but gave no info on what particular disorder he thinks he might have. When we ask what we should do we were told he would order some blood tests (refused to elaborate on what any of the tests were or what the results would tell us) and scheduled a follow-up appointment 2 months from now! His condition has rapidly progressed in the last 2 months and shows no sign of slowing down. His advice about what before our next appointment was "don't do anything that might result in you falling and fracturing something"..... how totally UNHELPFUL!!!

Anyway, I'm wondering if I got a primary care doctor to send a referral to Mayo neurology department if that might get the Sept appointment moved up????