Thanks. Yes I know lipomas are not the cause of Decums, I was asking if the lipomas could be the cause of my joint pain ?

@colleenyoung I was wondering if there is a way for people with Dercum's Disease, FML, Adiposis Dolorosa and Lipomas to have it's own support group? The disease has not been proven to be an autoimmune disorder or any other disorder. I don't think it should be categorized as is. Classifying it under autoimmune makes it difficult to find help when searching the site. I believe that the people (I'm one) who suffer with the rare disorder of Dercum's or Lipomas alone should have a support group for themselves. It would make it simple for us to find the group and easier to reach out to each other. I also think that the Mayo Clinic will benefit and find that there are many more people with these conditions. which can in turn will let them see and understand how critical research is needed in this field of medicine. Thank you for any help you may provide with my request.

I went to Mayo Clinic in Jacksonville, FL a couple years ago. Before going, I had researched my symptoms for several months. Dercum's Disease was one of the things that repeatedly popped up in my search. When I went to Mayo Clinic, I mentioned it. Most the doctors had never heard of it. The rheumatologist at Mayo, Andy Abril M.D., said, "Dorcum's syndrome is not universally accepted as a discrete disease." The dermatologist there was unfamiliar with DD too. She did a quick online search and then told me that I didn't have it because I wasn't overweight. I felt most of my very expensive visits with the Mayo Clinic were a waste of time and money.
A few month later, I saw a specialist, Karen Herbst, who diagnosed me with Dercum's Disease. She's currently based in California,she isn't associated with Mayo. Since my diagnosis, I still haven't found a local doctor who knows about, or seems willing to learn about, this disease.
Are the doctors at Mayo now familiar with Dercum's Disease? If I went back would they actually be able to help?

I’ve also been diagnosed with Dercum’s. I’m having to deal with more distressing symptoms from my other autoimmune conditions, but I’ll get back to using the leg sleeves with the pump when I’m up to it.