Thanks so much for your response. I have to research cervical vertigo. Before COVID I was going to an osteopath who took my head above neck into her hands and lightly stretched it and this helped. Nystagmus is annoying since the two eyes are not working together so this throws off your balance.
I agree that vestibular migraine covers so many symptoms for doctors. My nystagmus, dizziness, sinus pressure (and even one incident of short amnesia) were all attributed to migraine syndrome. The cures suggested (medications) are often worse than the disease! I am starting physical therapy again, acupuncture . My main problem is fear of walking without my cane--imbalance cause. Did your autoimmune reaction and resulting nystagmus get better at some point?
I spent too much time in front of a computer and this might have resulted in some of my problems.
Will try to find a solution without medication since I have real problems with this.
Thx again. Good to talk to someone about this. Nystagmus and vertigo really really affect daily living.

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