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PMR flare without a dose reduction

Polymyalgia Rheumatica (PMR) | Last Active: Jun 28, 2022 | Replies (12)

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@kmeikle1

@skiing Your proposed taper plan sounds reasonable (up 5 mgs. and then drop when you are stabilized to where you last felt good). Important to remember that prednisone does not cure PMR, it only covers the pain. Unfortunately, we need to modify our lifestyle (diet and level of exercise) to accomodate our disease. I can't do nearly as much exercise as I did before my diagnosis. Also, your CRP may be okay since you are taking prednisone which reduces inflammation. You are fortunate to have a doctor who trusts you to manage your prednisone. My rheumatologist does the same and I appreciate that. No one wants to be on prednisone (I certainly don't), and I don't take any more than I must to have even the limited quality of life I have. If you felt good at 9 mgs., you may need to stay there for awhile before attempting to taper to 8.5 which you were not ready for at this time.

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Replies to "@skiing Your proposed taper plan sounds reasonable (up 5 mgs. and then drop when you are..."

I'm due to drop from 13 mg to 12 mg today and I in no way feel ready for that. I've been sore through upper back and neck, back of thighs and this morning backs of arms started up. The weather here is so damp and humid last few days, which does not help. Not saying that this will continue, but I do not feel well enough today to do this and I'm already behind in the Rheumatologist's taper schedule, because I had to go up a bit from 12.5 to 13, two weeks ago (at which I only felt slightly better). I'm a believe in let your body do the talking. Ugh.