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Lyme disease and neuropathy

Neuropathy | Last Active: Jul 24, 2023 | Replies (28)

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@christine71

I was diagnosed with idiopathic P.N. a number of years ago. I have always wondered if the cause could be from deer tick bites. Tests were done, and came back negative. I still wonder. I have lost feeling in my feet, legs and hands. Now my knees and knuckles are stiff as well. Does anyone have experience with this. There is a clinic that looks into diseases spread by ticks located near me, but I'm wondering if it's worth the price? It's not covered by my insurance. Thanks.

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Replies to "I was diagnosed with idiopathic P.N. a number of years ago. I have always wondered if..."

Hello @christine71. I thought it may be helpful to bring in a few other members who have mentioned Lyme's Disease to see if they can share their experience with diagnosis to help you make your decision on what should come next for you. Members such as @cbrackle @sherlock @aeg73 and @cwallen9 may be able to rejoin this conversation and connect with you.

As well, you will notice that I have moved your post into an existing discussion on the same topic that you can find here: https://connect.mayoclinic.org/discussion/lyme-disease-and-neuropathy/

It may be beneficial for you to read past posts by members as well.

While we wait, here is some additional information on diagnosis and treatment that you may find helpful.

- Lyme Disease:
https://www.mayoclinic.org/diseases-conditions/lyme-disease/diagnosis-treatment/drc-20374655

Do you know what type of test you were given?