← Return to Severe GI symptoms, as yet unconfirmed diagnosis: Ideas of next steps?

Discussion
Comment receiving replies
@dragonfly123

I am not a doctor, but from my reading, Celiacs, is not always clear cut and dried...try cutting out wheat/gluten and see what happens. My blood test was high, but the small lab sample he took out of my gut, did not show the celiac "sprue" whatever them things are, but they are only "sprue" if you are eating wheat and I stopped. I also found that milk, occasionally, but not always, so I'm cutting out both lactose and adding lactaid enzyme along with the antibiotics. I wish you the very best, it's amazing how diverse and complicated the GI system is, and well, we never knew, kinda ignored it, and now, OMG, it says, "wake up and pay attention to me" okay!

Jump to this post


Replies to "I am not a doctor, but from my reading, Celiacs, is not always clear cut and..."

okay, dabbling with milk/lactose, still uncertain, and finding out more and more, taking an antibiotic ampicillin for a tooth due for a root canal, and added two different probiotics, I do have diverticulosis which they ignored, but I'm paying attention to, now...so, if my GI flora and fauna and/or whatever bugs, changed after the surgery, diet, CT scans, barium swallows! btw, Barium turns to lead in your gut, no wonder I ended up packed full of...turds. Anyhow back to, my guess is that there is some sort of a IBS, and the Linzess seems to help, but helped too much, so I quit, then started having blockage/bloating/gas, so back on it, but opened my 145 and only take a wet finger full, maybe a third, 50mcg in the morning, seems to be about right, I thought that the Linzess was prn, use as needed, but read that it s a daily thing and about a week after you stop or start, it stops, or starts working...etc. Also, back on the glycol, miralax, gas X, and added metamucil again, but pacing all of it, and since gluten free, about a couple months of no total constipation, very few hershey squirts, etc. I'm also pretty dang positive that I have some sort of tortuous colon, kind, bend, twist in the large colon, that I have to work on relaxing, breathing, pushing, and then things move along. I told them that a year ago, that they were looking at the wrong place, the hiatal hernia area, stomach, duodenum, and that I was plugged up further down the pike, and by god I'm right. So, my GI expert through in the towel, so I started reading all my labs reports progress notes, results, etc. He referred me to the Mayo clinic but humana gold ppo advantage medicaire, they don't have a contract with them, so I'm ...anyhow, did find another surgeon, and going to go talk with him, supposedly a good one, but surgeons, are like auto mechanics, they rarely have the communication skills of a pissant! blessing to all and many good AM BMS too!