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Pituitary and pNET: Can't do the things I love anymore
Brain Tumor | Last Active: Oct 30, 2022 | Replies (17)Comment receiving replies
Hi @sturns, welcome to the NETs group. Is that a picture of you surfing?
The abbreviation PNET is sometimes used for primitive neuroectodermal tumor and others use it to refer to pancreatic neuroendocrine tumors (pNET). Can you confirm what type of tumor you have so I can connect with others? What treatment are you currently having for pNET and to manage pain?
Replies to "Hi @sturns, welcome to the NETs group. Is that a picture of you surfing? The abbreviation..."
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Thank you, yes that is me and my passion that the pain keeps me from. I have pNET. Thank you for informing me about the difference. I get sandostation (sp), once a month and am going through a procedure now, it's Embolization with TACE, it is three runs, I just went through part 1 of three. The Dr. decided to make it three parts instead of one and the pain I felt for 7-10 days was off the scale. Great Doctor and procedure went well. The stomach distention is much less now . 23 tumors in liver and around the same through out the general area. the tumors are all stable and not growing which is good, I'm hoping the pain will lessen also. I do not do well with pain meds. Thank you for your reply.
Anthony