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chiari

Brain & Nervous System | Last Active: Mar 28, 2012 | Replies (11)

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@lawalker

I have been dx with chiari 1 about 2 months ago. (6mm herniation) I was told they didn't think all my sx's were from the chiari. severe dizziness for months numbing headaches for as long as i can remember. Tingling, like a pinched nerve in my neck. Had a MRI of my cervical spine and had nothing in a nerve just bulging disc and arthritis and mild scolosis showed in lumbar but they never seen the chiari on that MRI. Til a month later and had one of my brain. Then was told I have fibromylgia then had a EMG done and showed mild carpal tunnel. Everytime I go to the dr they want to look for some other cause for all my sx's. They don't want to even think that it is the chiari. My sx's are numerous. I had a 2nd MRI (cine) to check my spinal fluid. They said that my spinal fluid was flowing fine. I've done physical therapy it has helped with my dizziness. Dr said it is my decision if I want surgery, but after all he said could happen and I might end up in worse pain, I think I'll just live with my sx's. Any advise would be appreciated...

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Replies to "I have been dx with chiari 1 about 2 months ago. (6mm herniation) I was told..."

I have several of the symptoms you mentioned. 33 yr ago I had trauma to my head; from that time on I have had one symptom or other. I had never had a migrane till soon after that , it was less than a year till they diagnosed carpel tunnnel- did surgery to no avail, also tried steroid injections that didn't help. MRI shows cervical stenosis from several bulging disks and MRI of brainstem (just had in 2011) revealed 7mm chiari. I have many more symptoms & from reading about chiari, it seems most are related to the chiari. I'm , as you are, concerned about surgery. The risk of staph infection is a great concern. My drs. don't seem to know as much about chiari as I would have hoped.