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Anyone else have a Redundant / Tortuous Colon?
Digestive Health | Last Active: Nov 5 4:01pm | Replies (1097)Comment receiving replies
@sickofbeinsick1 Hi Tina. Know how you feel. Diagnosed with tortuous colon, insufficient pancreas, etc. But the most exasperating thing is the IBS. So everyday is different, never
knowing what the day will bring, constipation, diarrhea, etc. Must wear pads every day just
brings on a whole level of emotional trauma.
I went to a certified nutritionist, and that's the only thing that has helped. I scheduled 6 visits, and I am at my last meeting on line. Her protocol has helped, smoothies, soft foods. When I
deviate from it, its trouble. Went to a friend's house and ate things I should have run from,
sooooooo, looks like I have to be very strict about what I eat and what I don't eat.
Dr's are taught meds, surgery. I highly recommend a good Certified Nutritionist. My primary Dr. actually recommended food allergy testing and the Fod Map diet. I think its all about the food we eat.
Good Luck!
Replies to "@sickofbeinsick1 Hi Tina. Know how you feel. Diagnosed with tortuous colon, insufficient pancreas, etc. But the..."
So you mentioned pancreatic insufficiency…
Do you take the prescription enzymes? ie, zenpep or creon?
I was misdiagnosed for 30 years with IBS-D and it was a constant struggle because nothing really helped.
My condition ruled my life 😵💫.
Finally the 3rd gastro practice said I had a tortuous colon, diverticulitis, chronic gastritis, hiatal hernia, stomach ulcers, cachexia and IBS-D. ALL caused by exocrine pancreatic insufficiency. I now take Zenpep when I eat and it has truly changed my life for the better. My weight is now a healthy 106, (I’m only 5ft 2inches) and very fit age 67.
The ONLY foods I avoid is sucrose. That requires another prescription enzyme and I prefer to just avoid any added sugars. I consume all the fruit I desire with no issues whatsoever. If I want desserts, I just use Stevia to bake with and have no issues. I hope others that suffer from these digestive intestinal issues get tested for EPI. It’s estimated that there are MANY people misdiagnosed. It’s a genetic condition that was fairly unknown until around the year 2000.
There is HOPE! Never ever give up advocating for yourself.
I’ve been through ALL that. That’s why I took it upon myself to figure what I can & can’t eat. Everybody’s different, I can’t eat meat…(except fish & ground meat) I am a MEAT lover, it sucks…but, you get used to it. Not a big fan of fish…but once in a while I have it. Sometimes I don’t have to “eat” anything…if I wear something that’s snug AT ALL around my waist / mid-section, there will be hell to pay. Definitely not worth it.
What I really don’t understand, is how this happened. I always ate what EVER, but I never left home w/out Imodium. Always had diarrhea. Then everything changed…quite frustrating, especially for my family…since I can’t eat, I don’t cook (much)
C’est la vei ?
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I agree totally….everybody is different, so it’s not a One Size Fits All….it’s been trial & error for me, I’m getting there…like you, I have slipped knowing I should a run too, but, we’re only human