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johnsoncs1 (@johnsoncs1)

Anyone diagnosed with Phyllodes tumor?

Cancer | Last Active: Dec 17, 2022 | Replies (43)

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@colleenyoung

@rcmlee, welcome. I moved your message to this existing discussion about Phyllodes tumors.
– Anyone diagnosed with Phyllodes tumor? https://connect.mayoclinic.org/discussion/phyllodes/

I did this so you can connect more easily with other members like @johnsoncs1 @marvinjjc @mariewurch @cheddar @sarapusc who have experience with phyllodes tumors in the breast, some of whom have been to Mayo Clinic.

Have you submitted a request for a second opinion at Mayo Clinic. If not, here's the link to more information on how to do so. http://mayocl.in/1mtmR63

You can self refer or ask your wife's oncologist to submit a physician referral.

I know that this is a shocker to have found another lump during the expansion phase of reconstruction. But I sure am glad it was found. Is she scheduled for a second surgery?

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Replies to "@rcmlee, welcome. I moved your message to this existing discussion about Phyllodes tumors. - Anyone diagnosed..."

Yes, she is scheduled for a surgery Jun 16th. After that i may think of a opining in Mayo clinic on recurrence prevention options. I did do some research on Phyllodes groups in Facebook and also talking to oncologist friends and it did look like getting clear margins was strongly adviced.