Thank you for sharing your personal experience. I know that I need to ask my doctors specific questions but I'm just curious about what others have experienced so I can mentally prepare.

Hi Sherry, I will have my distal pancreatectomy next week, I have some questions that I would like to ask you, is it ok if I give you my email or can we send messages on here?
Thanks in advance

What kind of tumor did you have plz?

@skkirby
Hi, my wife is going in March 1st for this surgery. She was diagnosed April 2022, has completed 9 cycles of chemo, and the doctors are ready to try to remove as much is left. She also is having lesions removed (20 maybe) on liver, and remove gall bladder as it gets all clogged up from all the chemo the past few months. Questions to you are, I've read if possible, if the spleen can be saved to be very beneficial long term, I understand if the cancer is on the spleen there may be no choice. Were you explained that before the surgery or not? Just trying to get questions ready for the surgeon before pre op appointment next week for her surgery. Was your surgery open surgery or laporadic? Any and all info you can share either questions to the surgeon or if you had to do the surgery again, and basic advice?

Hello Sherry,
Thank you for sharing! I am sorry you are having issues with lying flat! Why is that?

First of all, why did you have this procedure. Was it 100% necessary? Did they biopsy your tumor and was it cancerous?

My case is in the "grey" area and i am wondering if I really want to go through this major surgery. What was the most challenging part of your recovery and how soon afterwards did you feel 100% back to normal. Also, did you have draining tubes for an extended period of time?

I would so love to connect with you via email if at all possible for some additional questions if you would be open to added sharing.

Thank you kindly,
Kate Coleman

I had a distal pancreatectomy/splenectomy for a pancreatic neuroendocrine tumor in October 2022. I'm glad to find a person who had that specific thing also, as it seems hard to find a lot online about that (especially with a neuroendocrine tumor, which apparently is rare?).
I'm in my fourth month of recovery and doing well except I do have some discomfort in my stomach, and wonder if it is due to a lot of scar tissue. My surgeon is kind of lax about giving me details, which is frustrating. I wonder if there's any medication I should be taking to improve digestion and bowel issues also. It's all new and confusing! I hope you're doing well.

Hi
Thats very helpful i had same op oct 27 2022 and am now experiencing more issues than in 1st 3 months.
My gp thinks i may have adhesions as Every few weeks i get horrific pains on waking & all day which last 7-10 days and wake me from sleep when painkillers wear off--4 hours is max sleep
Having temp & extremely swollen arm after the " splenic" injections as well.
Exhausting & a bit depressing and my friends are all younger & still at work.
Any advice please ?
How did your Dr or surgeon confirm scar tissue ??
Incision is huge isnt it ? i was shocked as expected laparoscopy but now have scars from both
Any advice will be helpful & appreciated
Cheryl
( im in Australia so drug brand names are different i think ?)

Hi Sherry
Did you get my last message. ?
Hui