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witsend000 (@witsend000)

Need advice on multiple symptoms (*long post*)

Just Want to Talk | Last Active: Jun 16 6:30am | Replies (20)

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Hi @witsend000 I found an interesting article today about the Epstein Barr Virus. You’d mentioned in your long list of symptoms that you had Mono when you were 10 years old. It is caused by the Epstein Barr virus (EBV).
In an earlier reply I’d wondered if you’d been checked for the EB Virus as it is never out of a person’s system once they’ve been infected. There some people who have ongoing issues for years of fatigue, flulike symptoms and more because the virus can reactivate when the immune system is weakened.
Here’s the article.
Let me know what you think!

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Replies to "Hi @witsend000 I found an interesting article today about the Epstein Barr Virus. You’d mentioned in..."

Thank you for the link.
It’s like this person is describing my life! Especially these exurbs…
-“ More than anything, mono exhausted me, and kept exhausting me—long after the infection was over. Getting out of bed felt like a herculean task.”
-“ The accusations of laziness and resulting shame were real. But the symptoms, as nebulous as they were, were even more so. I felt like I was living in an alternate reality, suffering in some invisible hell no one else could see or understand. My symptoms and character were regularly called into question.”
(I know others do this, but I daily call my own symptoms and character into question)
-“Other symptoms may involve aches and pains, tender lymph nodes, digestive issues, chills and sweats, muscle weakness, shortness of breath, brain fog, and an irregular heartbeat.”
(These are the symptoms I experience the most)

I don’t understand if this is a known condition with known “classic” symptoms, why in the heck don’t any of my doctors figure it out?! It’s so frustrating and disheartening 🙁

I’ve been completely disheartened with life. I’ve lost my spiritual faith. Lately, I‘ve just focused on finding ways to deal with my symptoms while being as useful to my husband, my parents, etc as I can.

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