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Just diagnosed with Endometrioid Adenocarcinoma: What to expect?

Gynecologic Cancers | Last Active: Dec 12, 2022 | Replies (239)
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@cmb2022

I had my first 3 month checkup this past week. I must say it was an extremely stressful week and I was very nervous to go to the appointment in the first place and in the end I didn't even get to see my oncologist. Apparently there was some sort of issues throughout the day and he was running pretty late, so an assistant came in and talked to me for a moment and did a quick exam. I asked about my menopausal symptoms as they are quite intense at times and she told me that I could try to take an extra pill that he prescribed for a couple days and that they aren't meant to take all symptoms away and to pretty much live with it. I am pretty disheartened at this point. I didn't expect the HRT to take everything away, but I would love to feel a little more like my old self.

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Helen, Volunteer Mentor | @naturegirl5 | Jun 12, 2022

@cmb2022 I've been thinking about you all week and sending positive thoughts for your exam. I was very nervous at my first follow-up exam in April (after the recurrence and radiation therapy I had in December, 2021). While I had to wait almost an hour to see the radiation oncologist the exam was thorough.

In my experience it is common to have a physical (pelvic) exam and no other tests such as blood tests or scans. After my hysterectomy the GYN/ONC surgeon told me this. She said that a recurrence is more likely to be found on physical exam and if that occurs a scan would be ordered. In fact, that's what happened to me in October, 2021 when the nurse practitioner that I see found a polyp-like growth at the top of my vagina on the vaginal vault.

What would you like to do next? Do you want to make an appointment with your gynecologist to discuss your menopausal symptoms and HRT medication? Do you want a referral to a gynecologist who specializes in menopause? It just seems to me that your oncologist is not responsive to your needs and I feel angry and sad for you.

I'm going to start a discussion in the Women's Health discussion group on HRT after hysterectomy.

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