I would like my fellow patients to know that there is a new Foundation that has been formed to support SMAS patients and their caregivers. I have previously posted under the title "SMAS vs duodenal malrotation". Please Google smasfoundation.org. The Foundation was started by an SMAS patient and her friends and family, and her GI specialist is on the Board. I found this organization while researching SMAS online. The Foundation's mission is to promote awareness of this rare condition, to contribute to research and development for finding treatments, and also to pursue funding to achieve these goals.

I was helped by the Foundation during a discussion with their GI MD advisor, who was very supportive and who encouraged me to have a diagnostic laparoscopy ASAP in order to determine my correct diagnosis for appropriate treatment. I followed his advice and found the answers for which I had been searching for years.

These people are very compassionate and they are good listeners! Check out their site, smasfoundation.org.