← Return to Camptocormia (bent spine syndrome or BSS): Looking for others

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@johnbishop

Hello @richardcampto, Welcome to Connect. I have not been formally diagnosed with Camptocormia but I'm pretty sure the diagnosis fits me also. My wife has told me I walk like an old man since I was in my 50s and now that I am an old man it's much worse. I walk leaning forward and it's difficult to stand up straight. I had thought about a brace but really wasn't sure it would help myself. I did have some PT a few years ago which were aimed at strengthening my lower back muscles which seemed to help some but sadly I haven't kept doing the exercises. I do need to keep doing them.

I found this article that might be something that will help and I may try to find myself an old backpack for a neighborhood walk with a few rocks 🙂
Back Extensor Strengthening Exercise and Backpack Wearing Treatment for Camptocormia in Parkinson's Disease: A Retrospective Pilot Study: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5608676/

I wasn't aware of the deep brain stimulation so had to look it up.
"There is no established treatment of camptocormia resulting from any etiology. Case series suggest that deep brain stimulation (DBS) of the subthalamic nucleus (STN-DBS) is effective in the acute but not the chronic stage of PD camptocormia." --- Pathophysiological Concepts and Treatment of Camptocormia: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5008234/

Is this the research you found?

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Replies to "Hello @richardcampto, Welcome to Connect. I have not been formally diagnosed with Camptocormia but I'm pretty..."

Yes, that's what I found,, mostly "No established treatment etc" I have tried PT no help, just got some Walking Sticks and they seem to help with walking upright, but as soon as I put them away,, I'm back to my Bent Over stance.. I finally found a doctor who knew what Camptocormia is,, (Movement Disorder Specialist) So far, I have tried PT, Cortisone, brace (too high on my back, so no help with the lower back) Water exercise, What I don't know yet, is whether it is related to PD, Axial or some type Myopathy and the prognosis,, also, does anyone have an opinion about using Braces, Walkers, Walking Sticks really help or does it contribute to further weakness in my/our backs?