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DiscussionCamptocormia (bent spine syndrome or BSS): Looking for others
Spine Health | Last Active: Oct 21 9:16am | Replies (127)Comment receiving replies
Replies to "Hello @richardcampto, Welcome to Connect. I have not been formally diagnosed with Camptocormia but I'm pretty..."
Yes, that's what I found,, mostly "No established treatment etc" I have tried PT no help, just got some Walking Sticks and they seem to help with walking upright, but as soon as I put them away,, I'm back to my Bent Over stance.. I finally found a doctor who knew what Camptocormia is,, (Movement Disorder Specialist) So far, I have tried PT, Cortisone, brace (too high on my back, so no help with the lower back) Water exercise, What I don't know yet, is whether it is related to PD, Axial or some type Myopathy and the prognosis,, also, does anyone have an opinion about using Braces, Walkers, Walking Sticks really help or does it contribute to further weakness in my/our backs?