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I have had nystagmus and vertigo for 20 years--was not bad at first. Recently developing pain in sinuses. Eyes have problems focusing and therefore the imbalance issue. I have been diagnosed with nystagmus, vestibular migraine.
*Neurologist recommended lexapro--took for 12 years but no help and now think it makes it worse.
*I have seen around 20 doctors and specialist in Bay area--neurologists, ENT, vertigo clinics, neuro ophthalmologists, etc. Latest docs think my problem is migraine syndrome. I started nortriptyline, but it made me slightly nausea, caused slight increase in blood pressure, and occasional skipping heart.
I can walk in a straight line but as soon as I turn I lose my balance.
I am fine reading, watching TV, at computer. I was a walker until the last 10 years, I am sad since now walking outdoors is a hazard if I am alone. I have fallen several times. I walk with a cane. I am better indoor. I think the focus outdoors is challenging.
Any suggestions would be appreciated.
Replies to "I have had nystagmus and vertigo for 20 years--was not bad at first. Recently developing pain..."
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Welcome @dprzybyl, I was not familiar with Nystagmus and had to look it up. @strokesurvivordynamo posted in another discussion asking @maryar if they had tried Binocular Vision Therapy for their vision Nystagmus. Here is some information on vision therapy that may be helpful - 9 Eye Conditions Improved With Vision Therapy: https://www.optometrists.org/vision-therapy/guide-to-vision-therapy/9-eye-conditions-improved-with-vision-therapy/
It sounds like you have seen many doctors and specialists. Have you done any research on your condition?