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CLIPPERS: Looking to connect with others

Autoimmune Diseases | Last Active: Dec 7 10:15pm | Replies (323)

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@donnarasmussen

Hi I am new on here and just had my MRI Orbits with contrast and without contrast 6/3/2022. My doctor, a Neuro Opthalmalogist is conferring with other doctors to come up with a plan for my ailments. He stated there are subtle findings in my brain stem and I have Bilateral Mastoiditis. Six months ago, just after Christmas 2021, I started having issues with Vertigo, and waking in the middle of the night about 3:00 AM vomiting. Then, on March 9, 2022, I got up in the morning, and about 10 minutes later, my whole body started tingling and going numb - quite scary. I checked my blood pressure and it was sky high. I stayed home and went back to sleep. Later I started feeling somewhat better, but was terrified I might have been having a stroke. For a couple of days, I could barely get up and move. I have issues with my balance and walking has become more difficult. My arms go numb and tingle a lot. Also, my eyes have double-vision and Rotary Mystagmus issues. I was in a bad car crash in 1993 with a bad head injury (unconscious) and was later diagnosed with PseudoTumor Cerebri with Catatonic Seizures. This went into remission in 2009. So I thought maybe this returned, but my optic nerves are fine. Any way, if you have any advice for me, please share, I am very open minded and would love to hear from you. Hugs to all of you.

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Replies to "Hi I am new on here and just had my MRI Orbits with contrast and without..."

Good morning @donnarasmussen you must be very frightened with all that’s going on. Do you live alone or with someone who can keep an eye on you? What you are describing doesn’t sound like Clippers so i thought this discussion group on brain issues might be more helpful. Check it out
https://connect.mayoclinic.org/group/brain-and-nerve-diseases/
One question: in March when your blood pressure was high and you felt numb and tingly, why did you go back to bed instead of the ER? No disapproval of your actions, just wondering.