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Taken off of Keytruda/Lenvima for stage 4 RCC
Kidney Cancer | Last Active: Feb 8, 2023 | Replies (11)Comment receiving replies
@nang, this sounds infuriating to not have your questions answered and even dismissed. There is a related discussion in the Lung Cancer group that you might wish to follow:
- After Keytruda, what's next? https://connect.mayoclinic.org/discussion/keytruda-1/
Fellow members @ta52 @richcolleen @loula @carebears91 may be able to share their experiences with changing medications and dealing with non-answers.
Nan, does your husband have an assigned symptom management nurse or oncology social worker who could help get you the answers you need and deserve? It's your right to understand the goal of treatment, how it works and what the plan is.
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I couldn't agree more, we deserve and have that right, after all it is my husband's life! I should check in to see if they have a symptom management nurse or a social worker. That would be extremely helpful. I'm guessing they do not but I will definitely check. I do appreciate the link you provided, after Keytruda and the members who might be able to help out. I will reach out to them. It's nice to have someone listen, to try and help and to provide us with support. I do appreciate your input. Thanks for your help.