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What's your experience with Orgovyx (relugolix)?

Prostate Cancer | Last Active: 16 hours ago | Replies (122)

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@colleenyoung

@web265, I think this is a great idea to start a thread dedicated to Orgovyx. I modified the title a wee bit. I believe that @itterac and @natem have experience with Orgovyx (relugolix) and @kujhawk1978 and @upnort may have something to add.

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Replies to "@web265, I think this is a great idea to start a thread dedicated to Orgovyx. I..."

I started taking Relugolix in late October of 2021.
My PSA number was 1300. Within several weeks it was down to 0.15. Side effects are similar to Lupron.
Myopathy, hot flashes, and gynecomastia. I take Relugolix every morning between 9, and 10am.
Hot flashes are usually over around 12: 00 pm.
I hope this helps.
Phil

Took Orgovyx July 1 (3) 2 and 3 and stopped due to confusion and heart pain....(have aneurysm OH Dbl ByPass 5/20) took every other day July 7 to July 18 and night of July 19 woke up to pounding heart----Docs want to change my carvedilol to metropolol and Orgovyx Pharm says heart meds increase side effects----men have died taking it -small % in lit but no number....I don't want to die from the ADT before I even have chance at the Beam
They want me to try every 3rd day BUT it will only take one POUNDING PULSE TOO MANY TO BLOW OUT THE 4.6 ANEURYSM...........now what?????What did they use Orgovyx came along? Why won't anyone talk to me-----????Doctors not readily accessible .....
Gleasons on May12 showed 5 samples at 4+5=9 all L side Prostate size=58 perineural invasion present PSA all2's til Jan 9 then Mar 10 June 16.7----Nuc Med Scan = NoBone PSMA PET CT Clear except at Sternum (pain there for 2 yrs every day after OH)2nd opinion Doc says Prostate has bulge is ready to burst ---something she saw in wording of MRI MAr 3 or Fusion Biopsy?---docs n diff systems and they can't see each other's tests....they also want brachytherapy but I just can't do that and big surgeon in Phily says "too late for surgery" soon it will be too late for the patient....and in will be in lymphs and/or bones and more if it breaks open