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Peripheral neuropathy, RLS and PLMD

Neuropathy | Last Active: May 9, 2023 | Replies (40)

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@artscaping

Greetings @dodeebug, and welcome to Connect. As a group, we are sharing advocates. That means that we learn from each other, share our personal experiences, and practice supportive responses. First of all, I don't have RLS. I do have trauma shivers from neuropathy. I became aware of this forum as a caregiver for my life partner. He has RLS and has been through the wringer with it, starting also with Gabapentin. Currently, on Ropinirole, he has been having some pretty sleepless nights. Recently he began to also have painful Charley Horses almost every night.

One of the recommendations was to significantly reduce or eliminate caffeine. He thought he was following the guidelines until I asked him why he was drinking so much iced tea. For some reason, he didn't think tea had caffeine in it. So, he drank it all day and had RLS at night. On top of that, he was told to start the first part of the Ropinirole dosage at about 4:30 pm. He never could remember until I set his phone alarm for 4:30 pm. Now it looks like both of these changes are making a difference. I am lying here "working" and he has already fallen asleep. Hmmmmm.

Please let me know what recommendations you receive and I will share them with him. Good luck to you.

What other beverages do you drink?

May you be free, safe, and protected from inner and outer harm.
Chris.....

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Replies to "Greetings @dodeebug, and welcome to Connect. As a group, we are sharing advocates. That means that..."

Hi so glad to hear from you. I find drinking tonic water does help. I put a slice of lime in it. I fix herb tea at night. There are so many wonderful flavors. Taking a suggestion from the blogs I now do stretching exercises for my legs. Haven't tried the foam roller yet. My doctor gave me lidocaine for my neuropathy. It is a deadening agent. My feet wake me up at night burning. During day if really bothering me, especially if standing for long time, I will use my Dr. Schools foot bath with epson salts.
Hope this helps.