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What does remission look like for antisynthetase syndrome?
Autoimmune Diseases | Last Active: Jun 6, 2022 | Replies (7)Comment receiving replies
@cantek I certainly feel for you as you taper your prednisone. It has taken me so long! I’m now working with a different endocrinologist and she has me taper 1/2 mg per month. It takes longer, but iv’e had no problems. A slower taper was the way to go!
Do you think your endocrinologist would be willing to let you do a slow taper? Ask her!!
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My Rheumatology Clinic is let’s say “ less than responsive”. I am figuring this out on my own for the most part.
They were very good with diagnosing but appear underfunded to be considered a comprehensive clinic.
There is a huge need for a Social Worker for a support group and a Triage Nurse with some empathy who actually returns calls…