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What does remission look like for antisynthetase syndrome?
Autoimmune Diseases | Last Active: Nov 19, 2024 | Replies (9)Comment receiving replies
I was diagnosed with AntiSynthetase Syndrome Oct of 2020, I also have Sjogrens.
I take Myfortis and Prednisone and have failed to wean twice. First time was told to go from 5mg daily to 5 mg MWF, flared.
Then went down by 1/2 mg/ week,
flared again! And I mean FLARED!!
Had to go up to 29 mg for a month😢
I’m now on 10 mg and watching for a flare, which in my case it’s the Mechanics Hands rash ( ASS symptom) and or dry mouth and dry ear canals that itch ( Sjogrens).
Initially thought it was Prednisone withdrawl symptoms.
Next… Accupuncture and decrease by 1/2 mg per week?
So much to learn and I am so thankful for this support group!❤️
Replies to "I was diagnosed with AntiSynthetase Syndrome Oct of 2020, I also have Sjogrens. I take Myfortis..."
what is your definition of "flare" I have been diagnosed with AS - is it skin rashes?
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@cantek I certainly feel for you as you taper your prednisone. It has taken me so long! I’m now working with a different endocrinologist and she has me taper 1/2 mg per month. It takes longer, but iv’e had no problems. A slower taper was the way to go!
Do you think your endocrinologist would be willing to let you do a slow taper? Ask her!!