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Anyone else have a Redundant / Tortuous Colon?

Digestive Health | Last Active: Nov 5 4:01pm | Replies (1097)

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@hopeful2

I get the general impression that even gastro docs really don't want to deal with this issue. It is unrewarding for them. I read in one scientific article on google scholar that if pain is a significant symptom for the patient before the resection, it is likely that it will be also after resection and even possibly worsen. I do recognize that there are times when the patient has no choice because the disease has progressed to the point that there is a danger of perforation. That is a difficult lesson I learned from caring for my husband through all his illnesses and surgeries: the illusion that docs will have an answer for every condition or even a correct diagnosis. There is a bit of the wizard of oz effect going on in the culture of medicine. As one wise poster said some time back, we glean what information that we can from a provider and then move on. I am grateful that Mayo has made it possible to learn from all of you. One thing that I learned on this Mayo site that has really help me with gas is to do the abdominal massage. I also read that they use that in caring hospice situations. I started looking at hospice/ and constipation due to cancer because it is a serious problem in those situations. I have learned that even in these conditions, the issue of constipation is not fully addressed.

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Replies to "I get the general impression that even gastro docs really don't want to deal with this..."

"I get the general impression that even gastro docs really don't want to deal with this issue."
I agree with you. My first GI doc never even told me I had a redundant colon until I happened to read it on a colonoscopy report. Seven years and many scopes after I started seeing him. It took me a year to get him to admit it "might" contribute to chronic constipation.....I believe it is the main cause. For me at least. I've had two other Doc's recommend having my colon removed if I didn't want to deal with it anymore.
They were serious. The "wizard of oz" effect is right on the money. I could go on and on, but I'm sure you have experienced it all. At this point my problem is that I have to take so much stuff to keep things moving, that I'm stuck in the house most of the day.
Anyway, I'll stop whining and go take my Linzess now.
Excellent post, by the way.