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ACNES, Abdominal Cutaneous Nerve Entrapment Syndrome

Chronic Pain | Last Active: Aug 16 2:32pm | Replies (305)
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@noaz

Here's my story:

I've had abdominal pain in my right side for many years. You've heard the tale: Tons of exams, GI doctors, talk about gall bladder surgery All tests normal. CTs, MRIs, Ultrasounds, etc. etc. The pain kept getting worse all the time.

Finally heard about ACNES. It sounded exactly like my problem. So, I started with the injections. Nothing worked.
I couldn't handle medication. (The only thing that eases the pain at all is ice and also TENS unit helps somewhat.)

Desperate, I had a neurectomy. Surely, that would fix it.
It didn't. Surgery didn't help.

I don't know what else to do.
Any ideas?

Thanks

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Replies to "Here's my story: I've had abdominal pain in my right side for many years. You've heard..."
John, Volunteer Mentor | @johnbishop | Jun 6, 2022

Welcome @noaz, I can't begin to imagine how difficult it must be for you to deal with the pain. It's good that you have found that ice and a TENSunit helps some but it's good to keep searching for answers and learning as much as you can about the condtion. I did find this article that sounds like it could be an answer for something to learn about if it works.

-- Ultrasound-guided intervention for chronic abdominal wall
pain; Overlooked but curative approach: https://jcimcr.org/pdfs/JCIMCR-v3-1836.pdf

Have you ever used Google Scholar (https://scholar.google.com/) for searching for the latest treatments or information?

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jgroudan | @jgroudan | Jun 8, 2022

Hi noaz,
I too suffered terribly from ACNES from early 2021 - horrible pain. Long story short after extensive visits to doctors I, by grace of God, found a great surgeon at St Joseph's Medical Center in Phoenix (Dr Thomas Gillespie). After 2 consultations he performed Robotic Laparoscopic surgery on me on 9/2/21. He cut my T8, T9 and T10 abdominal nerves. I left the hospital hours later cured. I'd be happy to discuss at length should you wish. Jeff in AZ

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