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Prednisone only mildly helpful for my PMR, is this common?

Polymyalgia Rheumatica (PMR) | Last Active: May 29, 2023 | Replies (26)
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@ldingwall88

Thanks so much for your response. I live in a very rural area of western NC and getting in to see *any* doctor is a challenge. I got a referral to a rheumatologist about 2 hours away but can't get in for a month. Perhaps the issue is dosage? I'm overweight so perhaps 15mg is too low. I have a call in to my dr about going up to 20mg. If it's not dosage, it must be a diagnosis issue. I really hope I don't have to live with this pain for another month because I honestly don't know if I can take it. Thanks again for your help.

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John, Volunteer Mentor | @johnbishop | Jun 6, 2022

Another thought that I learned after my first round with PMR is lifestyle changes. It's not easy but it's well worth it and might make it easier in the long run.

"If you have PMR, it's important to make time for physical activity. You may need to avoid strenuous activities, but light exercise can help improve your symptoms and overall sense of well-being. Some exercises may also help you prevent side effects from medications you're taking." --- Polymyalgia Rheumatica Diet: Do's and Don'ts - Healthline: https://www.healthline.com/health/polymyalgia-rheumatica-diet

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loyal | @loyal | Jun 7, 2022

I called in to the rheumatologist every day for a cancellation. Try doing that to get in earlier. The day I called twice was the day I got a cancellation 3 weeks sooner. Two of my blood tests showed high inflammation. I has tests before going to the rheumatologist. That helped with the diagnosis. My CRT and sed?? blood tests showed the inflammation. I have been doing a low carb and low sugar diet to help lower the inflammation.

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