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Anyone else have a Redundant / Tortuous Colon?
Digestive Health | Last Active: Nov 5 4:01pm | Replies (1097)Comment receiving replies
I was glad to hear that after your conversation with your husband, you had the hope and energy to keep searching for answers, as are we all here.
I read your contact with the motility specialist as she simply didn't have any answers so seized on the easy out of "It's all in your head." Is it possible that you have been written off as depressed in your medical record which reduces any effective intervention and the doctors can focus on easier cases with a clear conscience?
Reading Mayo Clinic's Drugs and Supplements very long entry for the Citalopram (Oral Route) she suggested is concerning.
My "NotMoff" name is based on Dr. Moff's laughing reply to my question as to how to reduce my obstipation impactions. He suggested I stand in front of the laxative aisle at Walgreens and try things randomly. He also commented casually that I had an incredibly tortuous colon (not in my medical records and news to me) as he rushed off to a waiting colonoscopy.
When I asked my internist for ideas, she said to try an out of Kaiser resource.
It doesn't appear to me there are many good answers out there. But I keep reading whatever I can find on the subject, walk daily to get my intestines moving, drink chia water, eat dried figs & prunes, take Miralax about 1/week, Smoothe Move about 2/month, do my own abdominal massage, and when my rectum is packed solid but reluctant to release, use manual extraction. I hope this isn't tmi.
As a relative newcomer to this group I wonder how many "graduates" there are . . .
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I need to clarify. She wasn’t saying it was “all in my head” or that I was depressed, but that the pain from my migraines was likely triggering (for lack of a better word) my gi system, as both are part of central nervous system and play off each other. So solution to gi issues is to fix headaches, which I have been attempting to do for over 30 years. Her only suggestion was to try the SSRI, which can calm the CNS and may help constipation. My frustration was her saying I needed to fix the migraines, like I hadn’t been doing that. Then she asked what I needed and I told her I couldn’t regulate meds to go regularly. Asked 3 times. Finally she said previous gi had me on good meds, saw no need to change. But they aren’t working for me. No answer. Said previous dr said extremely tortuous colon playing large part in my issues. Her answer, yes, saw that in your records. So basically I got absolutely no advice on anything. As far as the drug goes, believe me, I looked at all the side effects. I also emailed my neurologist to be sure it was ok with all my multitude of migraine drugs. I’ll give it a try, because, who knows? She says she has a different approach than most drs. I’m also calling for an apt tomorrow with a different gi!