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dontlikerns (@dontlikerns)

RNS Neurostimulator

Epilepsy & Seizures | Last Active: Jun 5 4:30pm | Replies (5)

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@amandajro

Hello @dontlikerns and welcome to Mayo Clinic Connect. I am sure it is frustrating to read only positive reviews on a device and find yourself experiencing it differently.

I noticed that you posted two similar posts on this topic so you will notice that I have removed the other version to allow members like @lsittll to connect with you here.

Are your doctors favorable to removing the device at your request? Have you ever considered seeking a second opinion at a teaching hospital where a team of doctors would focus on you?

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Replies to "Hello @dontlikerns and welcome to Mayo Clinic Connect. I am sure it is frustrating to read..."

Hello @amandajro
I must wait until I am 64 and I have Medicare if I want it removed because the removal is a surgical procedure that is done outside of a doctor's office. I have a large copay with a Medicare Advanced plan. The government is controlling the matter.

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