← Return to Neuropathy post-Covid infection: Is there treatment that helps?

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@jazzygirl5

Glad you’re at least a bit better for now, even though it’s temporary. I’ve learned to be thankful for the good days as I’ve been sick for over 2 years. Covid left me with a very serious lung condition that’s permanent and will affect me for the rest of my life. None of this is any fun, I hear ya.
Did covid exacerbate your neuropathy since it was already something you had? I’m surprised opiates and over the counter meds help your nerve pain but the proof is in the pudding. I do have a medical background and know that neuropathy is tough to treat. I don’t have fibromyalgia but I had excruciating burning pins and needles like I was on fire, then intense muscle pain where the pins and needle pain was and then extreme muscle weakness in the same places to the point of literally not being able to walk. This was at its worst when I had covid but came back to some extent after the vaccines. Gabapentin is a difficult drug to take and it’s hard to get the right dose, especially if the pain level keeps changing. It’s also extremely hard to get off of. You have to titrate down for a long time and it can give you untoward psychological side effects so be careful if you change your meds. I thought I was going to lose it when I went off! I also decided to not get anymore boosters because of the side effects, especially since it seems that they really don’t know enough yet about the actual protection they give you and the virus mutates constantly. I hope you find some permanent relief from your pain, but more importantly, I hope it goes away!

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Replies to "Glad you’re at least a bit better for now, even though it’s temporary. I’ve learned to..."

I had the Covid booster (my second) and the initial shots and booster made me sick for a day or so but nothing else. I got the second booster in the morning and 3 hours later my feet just went into overdrive with the pain. Luckily it only lasted a day or so and things went back to my normal.

I've had several Emg tests and a skin punch biopsy and my neurologist told me it was basically to cover his butt because sooner or later (he said) you're gonna need serious pain meds and now we know you have serious peripheral neuropathy so I can prescribe them when you need them. It's the only treatment. Maybe I could chop my feet off, I don't know. I've tried all kinds of supplements and none had any effect.

My pain is complex. Part A are disagreeable sensations that are 24/7 and I just live with them. Nothing touches them medication wise. Areas of numbness, super hyper sensitivity in other areas and all my toes that feel like wooden sticks that don't fit right. Part B is the bad stuff. Sometimes it feels like someone takes a pencil and is sticking it between my toes and is hammering it down. Mostly it's pulses of pain so piercing it's unbearable. I say this as someone who has been through bad Kidney Stone attacks in the past. This is when the Tramadol comes into play. It works great. If I didn't have it I'd be in big trouble.

Maybe we should have a "big pain" contest here and see who wins.