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I wonder if you are having vestibular migraines. That seems to be the diagnosis when nothing shows up in the ears. The other possibility is cervical vertigo, which is often not considered ( have you had whiplash) but from your description that seems unlikely. Do you get nausea?
Has anyone looked at your eyes for nystagmus? An investigation of BPPV could resolve that question. Those eye movements can cause symptoms similar to yours. BPPV is caused by dislodged ear crystals. There are other causes for nystagmus as well.
Overall it may be a migraine-?
Replies to "I wonder if you are having vestibular migraines. That seems to be the diagnosis when nothing..."
The ENT doctor did mention the migraines but I’ve never had a migraine before and don’t feel any type of headache feeling at all. I don’t get nauseous and they did test for BPPV too.
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Has anyone given you exercises for BPPV or vestibular neuritis or labyrynthitis? Since you say you do not sense the room spinning, these may be unlikely but the exercises can eliminate diagnoses. I have a lot of dizziness and am sorry you do too!